Taking Action Together - Dementia Action Week UK | Blog

Every year,  Dementia Action Week  shines a vital spotlight on a condition that touches millions of lives across the UK and beyond. Organised by the  Alzheimer's Society,  this important week is not just about raising awareness - it's a powerful call to action, empathy, and support.

Dementia affects over 900,000 people in the UK, and that number is growing. But the impact doesn't stop with the diagnosis - families, friends, carers, and communities are all part of the journey. Sadly, stigma and misunderstanding still surround dementia, often leading to loneliness and isolation for those affected.

What is Dementia Action Week?

Dementia Action Week (usually held in May) is a national event that encourages individuals, communities, and organisations to come together and improve the lives of people living with dementia. It's about challenging stigma, increasing understanding, and taking steps - big or small - to create a dementia-friendly society.

Living With Dementia - When It's Someone You Love

When someone you love is diagnosed with dementia, life doesn't change all at once - it changes in slow, often heartbreaking ways. If you live with that person, those changes are woven into your daily routine, your conversations, your plans, and your heart.

At first, it might be small things - forgotten appointments, repeating the same questions, misplacing items. But as time goes on, the shifts become bigger and harder to ignore. Roles within the home begin to change. You might find yourself taking on more responsibility - cooking meals, managing finances, remembering medications - things they once did without a second thought.

Emotionally, it's a rollercoaster. There are moments of deep sadness, frustration, and guilt. You grieve the person even while they're still with you, because pieces of who they were seem to fade a little more each day. And yet, you still catch glimpses - a smile, a shared laugh, a story they suddenly remember. Those moments can mean everything.

Living with someone who has dementia also affects your energy, your time, and your identity. You might be a spouse, a son or daughter, a sibling - but over time, the word carer starts to define you more and more. It's easy to lose yourself in that role. Social plans get cancelled, hobbies get pushed aside, sleep becomes a luxury. Some days, just getting through feels like a win.

And yet, despite the exhaustion, many people say the same thing:  I wouldn't trade this time for anything.  Because caring for someone you love, even through the hardest moments, is one of the most human things you can do.

It's not easy. It's not always graceful. But it's filled with a quiet kind of love that doesn't get talked about enough.

If you're living with someone who has dementia - you're not alone. Your patience, your strength, your presence they matter more than you know.